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H21 Supporting the carers

There is great pressure on those who care for people living with HIV and AIDS. Some carers visit those who are sick or dying. Full-time carers, often grandparents, may provide a permanent home for children who are orphaned by AIDS.

Most people who die as a result of AIDS are between 25 and 45 years old. This is an age when people would expect to be working and providing for their family and parents. Instead, older people find themselves providing a home for their grand-children. Older children may find themselves caring alone for their younger brothers and sisters. Families who are already struggling to care for their own children may provide a home for the children of relatives or friends. All these groups need support and practical help over a long period of time.

Carers are not suddenly given new abilities to cope with the situation. Just like everyone else they get tired, cross or ill. They can sometimes find difficult situations become impossible for them to cope with. It is important for individuals to be aware of their limits. If too few people share in caring, then the result will be exhausted carers who have to give up.

Discussion

  • What particular needs do families coping with the impact of HIV and AIDS have in our area?
  • Carers can support only a certain number of families, through visiting, making friends and caring for them at times of illness. It is recommended that carers do not try to help more than ten people who have HIV and AIDS. Otherwise they may become exhausted. Is ten a good number? Should we set limits when so many people need help?
  • How can we help families, particularly grandparents or older children, who are looking after children orphaned by HIV and AIDS?
  • How can we support carers who visit families affected by HIV and AIDS? What particular needs might they have?
  • Some organisations make funding available to support those living with HIV and AIDS. How could outside funding be used wisely to help those who most need help?

Go to H22

 

This page was last updated on 15 August 2005